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3mnkids1
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« on: August 21, 2008, 07:24:01 AM »

My daughter has been complaining a lot about pain in her shoulders, wrist, ankles and last night poor thing was almost in tears over pain in her legs and lower back.  I thought the shoulders and wrist were more than likely from sitting in an awkward position playing video games but her legs have me concerned. she is not a cry baby or over dramatic.. I could tell she was really hurting. She even took a Tylenol. She cant swallow pills so we put it in some chocolate cake.   laughing 

Maybe growing pains?  I know she has really bad ankles. It doesn't take much to sprain them. good thing she is a tom boy because she probably won't be able to wear heels that often.

guess it might be time to call the doctor. I dont have any idea other than growing pains what it could be.. no bone cancer links please..   laughing
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« on: August 21, 2008, 07:24:01 AM »

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ping1970
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« Reply #1 on: August 21, 2008, 07:36:13 AM »

Okay ~ here is my two cents with the growing pains...I have dealt with this with myself and now with Ashelyn and have talked with hundreds of people on the internet that have been through the same thing and people called them 'growing pains' and now we have what they call fibro.  I'm not telling you this to scare you, but just to make you aware of some of the concerns I am having with Ashelyn as well.  I think Ashelyn is having Restless Leg Syndrome.  Her legs hurt her so badly at night that she just cries.  She will take advil ~better than tylenol for the pain, but worse on the stomach, and go sit in a warm bath for sometimes over an hour.

The doctor doesn't want to even think about Restless Leg for an 11 year old, but I am telling you that the kids legs hurt like mine does.  RLS is just one in a spectrum of many things that makes up fibro.  Just because you have RLS does not mean that you will get fibro, but most of the woman that I talk to in my fibro support were told when they were little that they had 'growing pains' so we think there is a lot to it.  Just something for you to think about!
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cin
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« Reply #2 on: August 21, 2008, 07:40:01 AM »

I would take her to see the doctor just to be sure it's nothing serious. I know growing pains are usually in the legs but since her shoulders and wrist hurt it might be something else. JMO  Smile
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3mnkids1
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« Reply #3 on: August 21, 2008, 09:28:02 AM »

well I hope its not Fibro.. I have RLS and it stinks big time.   laughing  I think my youngest has it too. He doesn't complain about his legs but is always moving them in his sleep.  My daughter will be home in about ten minutes and I'm going to see how she is this afternoon. I hope better. She can be really... unpleasant when she isn't feeling well.
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tharedhead
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« Reply #4 on: August 21, 2008, 09:54:03 AM »

And I want to whack Ashelyn's doctor up side of the head with a damp mackerel laughing

To quote Thomas J. A. Lehman MD, Chief, Division of Pediatric Rheumatology,Cornell University Medical College.
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The key finding for growing pains is that the child is absolutely fine when they wake up in the morning.  There is no pain, no limping, or any other abnormality in the morning.  Whenever pain is still present when the child wakes up in the morning or occurs while the child is awake, it must not be dismissed as  ‘growing pains.’

Many people who have been patted on the head and told they had "fibro" later find out they have a broad spectrum of other disorders. One of the main problems with the "growing pains" diagnosis is that it often delays the diagnois of other more serious, even fatal disorders-and many people who's kids have these disorders are not posting on the internet much because they are either involved in struggling with their kids surgeries and treatments, or their kids or dead.
Maire-Charcot Tooth causes weak ankles, and its really common and woefully underdiagnosed.
This is a good article on that disorder

http://www.post-gazette.com/pg/07360/844206-114.stm

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As a kid, Briget Shields suffered from terrible leg cramps. "Growing pains," her doctor said.

But what about her skinny legs, the fragile ankles she would sprain or break if she tried to engage in sports? No one really thought too much about them. Not everyone has big, muscular legs, and kids do get hurt, you know.



http://www.mayoclinic.com/health/charcot-marie-tooth-disease/DS00557
http://www.ninds.nih.gov/disorders/charcot_marie_tooth/detail_charcot_marie_tooth.htm

Just as a matter of interest, how did your doctor decide on your diagnosis of "Restless Leg Syndrome"? Did you have a proper nerve conduction test and so forth, or did he or she just go by symptoms?  scratch

http://www.ninds.nih.gov/disorders/restless_legs/detail_restless_legs.htm

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Despite these efforts to establish standard criteria, the clinical diagnosis of RLS is difficult to make. Physicians must rely largely on patients' descriptions of symptoms and information from their medical history, including past medical problems, family history, and current medications. Patients may be asked about frequency, duration, and intensity of symptoms as well as their tendency toward daytime sleep patterns and sleepiness, disturbance of sleep, or daytime function. If a patient's history is suggestive of RLS, laboratory tests may be performed to rule out other conditions and support the diagnosis of RLS. Blood tests to exclude anemia, decreased iron stores, diabetes, and renal dysfunction should be performed. Electromyography and nerve conduction studies may also be recommended to measure electrical activity in muscles and nerves, and Doppler sonography may be used to evaluate muscle activity in the legs. Such tests can document any accompanying damage or disease in nerves and nerve roots (such as peripheral neuropathy and radiculopathy) or other leg-related movement disorders. Negative results from tests may indicate that the diagnosis is RLS. In some cases, sleep studies such as polysomnography (a test that records the patient's brain waves, heartbeat, and breathing during an entire night) are undertaken to identify the presence of PLMD.










« Last Edit: August 21, 2008, 10:16:33 AM by tharedhead » Logged

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« Reply #5 on: August 21, 2008, 10:38:21 AM »

We were discussing leg and knee pain last night.  Red, need your help here with the proper name!

Hubby is 6'7" and has this leg/knee(not really sure)disease.  It isn't fatal or debilitating or anything of the sort.  But it caused him to have a protruding bump right under his knee cap.  My oldest has it and so does the neighbor kid.  They're going through puberty and have tender leg pain from the disease and from growing.  When they bump the little bumps under the knee cap, it hurts bad. 

The way our pediatrician explained it was this:  it's not necessarily a disease but a condition.  And it's prevalent in boys who will be tall and are born from tall parents.  It's pretty common according to our pediatrician.  Like I said, it doesn't cripple them, make them gimpy or anything of the sort and they basically grow up and out of the condition.  The pain goes away as they get older.

Trace, are you and your hubby tall peeps?  Your daughter plays sports, right?  Our pedi says it is more prevalent in kids who play sports because they're forever using their legs and that puts a beating on the knees.

It really does sound like growing pains but if she's crying and taking Tylenol which isn't what she normally does, I'd take her to the doc too, to be on the safe side.

I sure as hell hope it isn't fibro, but that and RLS both make sense as well.

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3mnkids1
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« Reply #6 on: August 21, 2008, 11:07:39 AM »

neither of us are tall.. Im 5' 6" and hubby is 5' 9"..    laughing   She doesnt play sports either unless beating up her brothers counts.   scratch 

Sorry your son is having problems too.  It stinks
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tharedhead
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« Reply #7 on: August 21, 2008, 11:11:04 AM »

Is that Osgood-Schlatter disease? DH had that (he was 6 feet tall at age 10)
Its annoying but generally not a huge problem, as your excellent Ped. correctly explained sunny
http://uscuh.staywellsolutionsonline.com/Library/Encyclopedia/3,83814
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completelyme
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« Reply #8 on: August 21, 2008, 11:19:26 AM »

Is that Osgood-Schlatter disease? DH had that (he was 6 feet tall at age 10)
Its annoying but generally not a huge problem, as your excellent Ped. correctly explained sunny
http://uscuh.staywellsolutionsonline.com/Library/Encyclopedia/3,83814

Yep Yep!!  That's it!
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ping1970
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« Reply #9 on: August 21, 2008, 01:02:02 PM »

well I hope its not Fibro.. I have RLS and it stinks big time.   laughing  I think my youngest has it too. He doesn't complain about his legs but is always moving them in his sleep.  My daughter will be home in about ten minutes and I'm going to see how she is this afternoon. I hope better. She can be really... unpleasant when she isn't feeling well.

How is she feeling this afternoon?
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3mnkids1
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« Reply #10 on: August 21, 2008, 01:54:23 PM »

They still hurt.. we were both on the couch and I went to get up and bumped into her leg and she said ouch! real loud.. she is soaking in the tub right now. I hope that it helps.
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ping1970
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« Reply #11 on: August 21, 2008, 02:11:07 PM »

I saw some stuff at Wal-Mart this afternoon that is for leg pain it is down by the Midol and such, I forgot what the name of the stuff is, but it has leg in it, but it is for nighttime leg pain as it helps you go to sleep.  Ashelyn is way to small for something like that yet, but it may be an option for you guys...just to try
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3mnkids1
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« Reply #12 on: August 21, 2008, 02:22:40 PM »

I saw some stuff at Wal-Mart this afternoon that is for leg pain it is down by the Midol and such, I forgot what the name of the stuff is, but it has leg in it, but it is for nighttime leg pain as it helps you go to sleep.  Ashelyn is way to small for something like that yet, but it may be an option for you guys...just to try

Thanks. I will see if I can find it.. 
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« Reply #13 on: August 21, 2008, 02:35:52 PM »

I took Requip for almost a year and it did seem to help when I wasn't at my worst, but when I went into kidney failure they took me off of it...stupid kidneys make me go off of all the good stuff laughing
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3mnkids1
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« Reply #14 on: August 21, 2008, 02:46:37 PM »

Im not taking anything.. like most medicine it has so many side effects.. Im a worry wart already I dont need anything else to worry about
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amyshulk
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« Reply #15 on: August 22, 2008, 05:32:07 PM »

Growing pains are REALLY painful - I grew really fast  cry so many nights I cried until I figured out that heat really helped - I used Ben Gay and wrapped my little sis's cloth diapers around them and layed in front of the heat vent (it was a wall one - about 4-5' tall) and would fall asleep with a leg on the wall on either side of the vent!!!  crazy tongue

Maybe have her try espom baths, and good stretching after before she goes to bed, with a heating pad or 2???

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3mnkids1
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« Reply #16 on: August 23, 2008, 03:12:12 PM »

Thanks everyone.  I made an appt with the doctor. I hope he can tell us what the problem is. 
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