Grand baby

tobby1

tobby1

New member
My son called me today and told me some really bad news. His wife is about 4 months pregnant and they did an amino today. The doctors told him the baby is not well. They said the baby has either spinal bifida, muscular dystrophy or downs syndrome. I have never heard such anguish in my sons voice as I heard today and it tears my heart out. I am heartbroke about the poor baby having to suffer, if he or she even makes it to be with us. Right now I am just lost and not knowing which way to turn to help the kids deal with this. They are going for a second opinion and redoing the test. We will have the new results Monday, but they said not to hold out much hope that they will be different. I know God will take care of them and the baby, but I still am just heartbroke right now, my grandchildren are a major part of my life and I love them more then life itself. And hearing the pain in my sons voice just kills me. He is trying to be strong for his wife and being a good dad and husband, but he is still my baby, and seeing him hurting so bad just really does a number on me. Thank you for letting me whine and prayers would be greatly appreciated
 
:love:

Tobby1, whatever happens, you will find the strength you need. You have a loving supportive family and strong faith and you will get through this. My heart goes out to you. Will pray.
 
I am sorry to hear about that. I hope that you and your son and your whole family can find strength during this tough time. And there is always hope that the second opinion will tell you something different.
 
So sorry that they didn't get the news they wanted to hear. I know this has to be difficult for your family. This is when God's love will help you all stay strong. Will keep your family in my prayers.
 
My friend I am so so sorry to hear that you and your son and his wife are having to deal with this trial. I know there is nothing I can say to take away the pain. I will pray for all of you that God is going to see you through to the other side of this hurt. Whatever the outcome he will be right in the midst of this situation with open arms. In the end God will be there and you know I am here to listen.
 
well we found out the baby has a syndrome called trisomy 18, it is a very deadly syndrome with only 10 percent of the babies living to 1 year old and most die at birth. Usually boys have higher mortality then girls, and they are having a boy. the doctor has not even told them how terrible it is, they are both like well at least it is not some of the terrible things they were talking about, all the doctor told them is that the baby will probably have clubbed hands and might have heart trouble. But I googled it and it is absolutely terrible. they have to go back for more test in a month, and I will go and if the doctor does not tell them more then I will ask him about it in front of them. I am heart broke and feel like someone stomped on my heart. I love my kids so much and grandbabies are my world, I hate to see all the hurt that is to come.
 
Tobby1, my heart breaks for you and your family. I don't know what else to say. God has a reason for everything and sometimes it isn't for us to know. Hang in there, you and your family are in my prayers.
 
I cannot imagine what you all are going through. You all and the baby are in my thoughts and prayers. I wish I could do more.
 
Tobby1, I did a little bit of reading on trisomy 18. The one thing that stuck out for me was that neither parent should take any blame for this happening. It is 'just one of those things'. Your son and daughter-in-law should in no way feel responsible for this tragedy. Everyone wants their child to be healthy and it is natural to feel guilty if the child is not. Please stress to them that this IS NOT because of something they did. There are support groups for trisomy 18. Maybe contacting one now would help you all through this. Again, my heart breaks for all of you.
 
yes I got the same thing about neither one is to blame, I talked to my son more and he does know it is worse than they were letting on to me, just did not want to worry mom maybe, but also since the regular ultrasound did not show the signs of it they are taking the route it won't be bad or not there, but if you research it, it is normal for the regular ultrasound at this stage to look ok, I read several stories about parents that had it and several said early on the regular ultrasound looked normal. she is scheduled for the other kind of ultrasound next month, so maybe they do know more and just are not ready to face it yet or trying to keep mom happy, no such luck, they should know I will check in to it if it is about my grand babies, I guess we will just have to take a time will tell attitude and pray for our littlest boy to not suffer or have any pain. I know God will get us through this, it is just really a rough thing to swallow, thank you all for your kindness, and please pray for them and the baby, I know God can do anything, and I also know there is reasons for all that happen, even if we don't even begin to understand why.
 
Sounds like grandma is on top of things. Sorry to hear that the update wasn't any better news. I will continue to pray for you and your family.
 
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